O que pode\u00admos apren\u00adder sobre a situ\u00ada\u00ad\u00e7\u00e3o de vida das pessoas com les\u00f5es causa\u00addas pela tali\u00addo\u00admida quando suas neces\u00adsi\u00adda\u00addes s\u00e3o consi\u00adde\u00adra\u00addas de forma hol\u00eds\u00adtica? Debo\u00adrah Jack apre\u00adsenta as chama\u00addas Avali\u00ada\u00ad\u00e7\u00f5es Hol\u00eds\u00adti\u00adcas de Neces\u00adsi\u00adda\u00addes (Holis\u00adtic Needs Asses\u00ads\u00adments \u2013 HNAs) e explica quais percep\u00ad\u00e7\u00f5es esses levan\u00adta\u00admen\u00adtos de neces\u00adsi\u00adda\u00addes reve\u00adlam sobre a vida dos sobre\u00advi\u00adven\u00adtes da tali\u00addo\u00admida no Reino Unido. <\/p>\n
Al\u00e9m disso, ela oferece uma breve vis\u00e3o geral de outras inici\u00ada\u00adti\u00advas atuais e plane\u00adja\u00addas no Reino Unido, que tamb\u00e9m podem ser de inte\u00adresse para pessoas afeta\u00addas e orga\u00adni\u00adza\u00ad\u00e7\u00f5es de outros pa\u00edses.<\/p>","excerpt":"
Percep\u00ad\u00e7\u00f5es obti\u00addas a partir de avali\u00ada\u00ad\u00e7\u00f5es hol\u00eds\u00adti\u00adcas de neces\u00adsi\u00adda\u00addes e inici\u00ada\u00adti\u00advas atuais<\/p>","slug":"vida-com-lesoes-causadas-pela-talidomida-no-reino-unido-o-que-os-afetados-precisam-hoje","image":false,"all_day":false,"start_date":"2026-10-29 10:00:00","start_date_details":{"year":"2026","month":"10","day":"29","hour":"10","minutes":"00","seconds":"00"},"end_date":"2026-10-29 11:00:00","end_date_details":{"year":"2026","month":"10","day":"29","hour":"11","minutes":"00","seconds":"00"},"utc_start_date":"2026-10-29 09:00:00","utc_start_date_details":{"year":"2026","month":"10","day":"29","hour":"09","minutes":"00","seconds":"00"},"utc_end_date":"2026-10-29 10:00:00","utc_end_date_details":{"year":"2026","month":"10","day":"29","hour":"10","minutes":"00","seconds":"00"},"timezone":"Europe\/Berlin","timezone_abbr":"CET","cost":"","cost_details":{"currency_symbol":"\u20ac","currency_code":"","currency_position":"","values":[]},"website":"https:\/\/egmond-circle.eu\/pt-br\/veranstaltung\/vida-com-lesoes-causadas-pela-talidomida-no-reino-unido-o-que-os-afetados-precisam-hoje\/","show_map":false,"show_map_link":false,"hide_from_listings":false,"sticky":false,"featured":false,"categories":[{"name":"Discurso","slug":"discurso","term_group":0,"term_taxonomy_id":96,"taxonomy":"tribe_events_cat","description":"","parent":0,"count":19,"filter":"raw","id":96,"urls":{"self":"https:\/\/egmond-circle.eu\/pt-br\/wp-json\/tribe\/events\/v1\/categories\/96","collection":"https:\/\/egmond-circle.eu\/pt-br\/wp-json\/tribe\/events\/v1\/categories"}}],"tags":[{"name":"Bloco tem\u00e1tico: Compreens\u00e3o","slug":"bloco-tematico-compreensao","term_group":0,"term_taxonomy_id":95,"taxonomy":"post_tag","description":"","parent":0,"count":39,"filter":"raw","id":95,"urls":{"self":"https:\/\/egmond-circle.eu\/pt-br\/wp-json\/tribe\/events\/v1\/tags\/95","collection":"https:\/\/egmond-circle.eu\/pt-br\/wp-json\/tribe\/events\/v1\/tags"}},{"name":"Congresso","slug":"congresso","term_group":0,"term_taxonomy_id":116,"taxonomy":"post_tag","description":"","parent":0,"count":39,"filter":"raw","id":116,"urls":{"self":"https:\/\/egmond-circle.eu\/pt-br\/wp-json\/tribe\/events\/v1\/tags\/116","collection":"https:\/\/egmond-circle.eu\/pt-br\/wp-json\/tribe\/events\/v1\/tags"}}],"venue":{"id":10041,"author":"1","status":"publish","date":"2026-10-16 12:56:52","date_utc":"2026-10-16 10:56:52","modified":"2026-10-16 12:56:52","modified_utc":"2026-10-16 10:56:52","url":"https:\/\/egmond-circle.eu\/pt-br\/local\/zuiderduinsaal-palestra-online-com-transmissao-ao-vivo\/","venue":"Zuiderduinsaal \/ Palestra Online com Transmiss\u00e3o ao Vivo","slug":"zuiderduinsaal-palestra-online-com-transmissao-ao-vivo","json_ld":{"@type":"Place","name":"Zuiderduinsaal \/ Palestra Online com Transmiss\u00e3o ao Vivo","description":"","url":"","address":{"@type":"PostalAddress"},"telephone":"","sameAs":""},"show_map":true,"show_map_link":true,"global_id":"egmond-circle.eu\/pt-br\/?id=10041","global_id_lineage":["egmond-circle.eu\/pt-br\/?id=10041"]},"organizer":[{"id":6233,"author":"1","status":"publish","date":"2026-09-28 15:02:11","date_utc":"2026-09-28 13:02:11","modified":"2026-10-16 22:00:42","modified_utc":"2026-10-16 20:00:42","url":"https:\/\/egmond-circle.eu\/pt-br\/organizador\/phd-bsc-marie-t-kehoe-osullivan\/","organizer":"Marie Kehoe\u2011O\u2019Sullivan","description":"
Marie Kehoe\u2011O\u2019Sullivan \u00e9, desde novem\u00adbro de 2021, a inter\u00adlo\u00adcu\u00adtora naci\u00ado\u00adnal para as pessoas afeta\u00addas pela tali\u00addo\u00admida no servi\u00e7o de sa\u00fade irlan\u00add\u00eas (Health Service Execu\u00adtive, HSE). Nesta fun\u00e7\u00e3o, ela traba\u00adlha em estreita cola\u00adbo\u00adra\u00ad\u00e7\u00e3o com pessoas que nasce\u00adram com malfor\u00adma\u00ad\u00e7\u00f5es causa\u00addas pela tali\u00addo\u00admida e que vivem na Irlanda. Seu obje\u00adtivo \u00e9 melho\u00adrar o acesso \u00e0 assis\u00adt\u00ean\u00adcia m\u00e9dica e aos servi\u00ad\u00e7os de apoio social, adaptando-os \u00e0s neces\u00adsi\u00adda\u00addes indi\u00advi\u00addu\u00adais dos afetados. <\/p>\n
No in\u00edcio de sua ativi\u00addade, ela reali\u00adzou conver\u00adsas pesso\u00adais com os afeta\u00addos para conhe\u00adcer suas expe\u00adri\u00ad\u00ean\u00adcias, dese\u00adjos e neces\u00adsi\u00adda\u00addes de apoio. Junta\u00admente com eles, desen\u00advol\u00adveu um conceito para o acesso \u00e0 assis\u00adt\u00ean\u00adcia m\u00e9dica e aos servi\u00ad\u00e7os de apoio social. Disso surgiu o Nati\u00ado\u00adnal Thali\u00addo\u00admide Advo\u00adcacy Office, um \u00f3rg\u00e3o naci\u00ado\u00adnal de consul\u00adto\u00adria e repre\u00adsen\u00adta\u00ad\u00e7\u00e3o de inte\u00adres\u00adses com quatro cola\u00adbo\u00adra\u00addo\u00adres, finan\u00adci\u00adado por recur\u00adsos espe\u00adc\u00ed\u00adfi\u00adcos do governo irland\u00eas. <\/p>\n
Marie Kehoe\u2011O\u2019Sullivan possui longa expe\u00adri\u00ad\u00ean\u00adcia inter\u00adna\u00adci\u00ado\u00adnal no desen\u00advol\u00advi\u00admento da quali\u00addade nos seto\u00adres de sa\u00fade e assis\u00adt\u00ean\u00adcia social. Ela atuou nessa \u00e1rea por 20 anos nos EUA e por mais 24 anos na Irlanda. O foco de seu traba\u00adlho \u00e9 a melho\u00adria das estru\u00adtu\u00adras de aten\u00addi\u00admento, o desen\u00advol\u00advi\u00admento de padr\u00f5es de quali\u00addade e a estreita coope\u00adra\u00ad\u00e7\u00e3o com as pessoas para as quais as ofer\u00adtas de apoio s\u00e3o criadas. <\/p>","slug":"phd-bsc-marie-t-kehoe-osullivan","website":"https:\/\/egmond-circle.eu\/de\/personen\/#kehoe-osullivan","json_ld":{"@type":"Person","name":"Marie Kehoe\u2011O\u2019Sullivan","description":"<p>Marie Kehoe-O\u2019Sullivan \u00e9, desde novembro de 2021, a interlocutora nacional [...]<\/p>\\n","url":"https:\/\/egmond-circle.eu\/de\/personen\/#kehoe-osullivan","telephone":"","email":"","sameAs":"https:\/\/egmond-circle.eu\/de\/personen\/#kehoe-osullivan"},"global_id":"egmond-circle.eu\/pt-br\/?id=6233","global_id_lineage":["egmond-circle.eu\/pt-br\/?id=6233"]},{"id":11776,"author":"1","status":"publish","date":"2026-10-20 17:28:36","date_utc":"2026-10-20 15:28:36","modified":"2026-10-20 17:28:36","modified_utc":"2026-10-20 15:28:36","url":"https:\/\/egmond-circle.eu\/pt-br\/organizador\/deborah-jack\/","organizer":"Deborah Jack","slug":"deborah-jack","website":"https:\/\/egmond-circle.eu\/de\/personen\/#jack","json_ld":{"@type":"Person","name":"Deborah Jack","description":"","url":"https:\/\/egmond-circle.eu\/de\/personen\/#jack","telephone":"","email":"","sameAs":"https:\/\/egmond-circle.eu\/de\/personen\/#jack"},"global_id":"egmond-circle.eu\/pt-br\/?id=11776","global_id_lineage":["egmond-circle.eu\/pt-br\/?id=11776"]}],"custom_fields":[],"json_ld":{"@context":"http:\/\/schema.org","@type":"Event","name":"Vida com les\u00f5es causadas pela talidomida no Reino Unido \u2013 o que os afetados precisam hoje","description":"<p>Percep\u00e7\u00f5es obtidas a partir de avalia\u00e7\u00f5es hol\u00edsticas de necessidades e iniciativas atuais<\/p>\\n","url":"https:\/\/egmond-circle.eu\/pt-br\/veranstaltung\/vida-com-lesoes-causadas-pela-talidomida-no-reino-unido-o-que-os-afetados-precisam-hoje\/","eventAttendanceMode":"https:\/\/schema.org\/OfflineEventAttendanceMode","eventStatus":"https:\/\/schema.org\/EventScheduled","startDate":"2026-10-29T10:00:00+01:00","endDate":"2026-10-29T11:00:00+01:00","location":{"@type":"Place","name":"Zuiderduinsaal \/ Palestra Online com Transmiss\u00e3o ao Vivo","description":"","url":"","address":{"@type":"PostalAddress"},"telephone":"","sameAs":""},"organizer":{"@type":"Person","name":"Marie Kehoe\u2011O\u2019Sullivan","description":"<p>Marie Kehoe-O\u2019Sullivan \u00e9, desde novembro de 2021, a interlocutora nacional [...]<\/p>\\n","url":"https:\/\/egmond-circle.eu\/de\/personen\/#kehoe-osullivan","telephone":"","email":"","sameAs":"https:\/\/egmond-circle.eu\/de\/personen\/#kehoe-osullivan"},"performer":"Organization"}}