Assistance: Well supported – living self-determined
In the workshop “Your Support Network” on October 29, 2026, Geraldine Freeman presented different pathways to support
How does the need for support change with age? And how can help be organized without giving up one’s own independence? In the workshop “Your Support Network” on October 29, 2026, Geraldine Freeman of the UK’s Thalidomide Society shared personal experiences and different pathways to support.
When Loved Ones Reach Their Limits
Many people with Contergan/Thalidomide damage have been supported by their partners for decades. But what happens when they themselves grow older or fall ill? Angela Donnellon shares how she supports her husband Kevin in daily life and the role personal assistance and family play. Through the project, she realized that they both need to plan even more carefully for the future.
Video: Interview with Angela Donnellon
Support creates freedom
For a long time, Eddie relied primarily on the help of his family and partners. Today, he is supported by a personal assistant. This allows him to get out more again, pursue his interests, and make new plans. Looking back, he wishes he had taken this step much sooner.
Video: Eddie on new independence
Planning Ahead Together
Jackie and Andy support each other in daily life. They experienced how quickly this familiar system can reach its limits after an operation and an accident. Their story shows why it is important to organize additional help in good time—even for unexpected situations.
Video: Jackie and Andy on Mutual Support
Rethinking independence
The examples from the workshop make it clear: support does not necessarily mean losing independence. Rather, it can help one make their own decisions, ease the pressure on relationships, and ensure a life that is living self-determined, even as needs change.
Similar and also interesting
Egmond Circle – Voices and Impressions
Bianca Vogel-Schmidt mingled with the participants, capturing personal stories, thoughts, and experiences.
Advice and Information at the “Egmond Circle”
In the workshop “Your Support Network” on October 29, 2026, Geraldine Freeman presented different pathways to support
Health in focus – together across borders
Research, practical support, and experiences from different countries
